A medications and weight gain newsletter is coming soon!

My counter once looked like this! Just kidding.

Yes, after a brief hiatus the newsletter will be out soon. This is a great one: a four part series on bipolar disorder medications and weight gain. What a topic. I know it has been a serious worry of mine since I started medications in 1995.

The newsletter series explains the ins and outs of the weight gain, tells lots of stories and offers ideas on how to stay on bipolar meds and maintain a healthy body. I also cover the topic of metabolic syndrome. It is for those with the illness as well as family members, partners, friends and health care professionals.

Let’s work together on this. It’s a serious issue in so many ways. We need a plan that covers all areas of bipolar disorder management- and an essential part of the plan is finding medications that work.

I will send the newsletter later today- so please check your spam folder if you have not received one by this evening. I will then post the newsletter on the blog. If you have not signed up for the newsletter, there is a sign up box to your right.

This is a month long series you will not want to miss. 

Julie

My Mother is Getting Minor Surgery…..

My mom is my number one champion in all that I do. She is getting a ‘minor’ surgery today. I once heard that there is no such thing as minor surgery if someone has a knife anywhere near you!

I am here at the hospital working until I will take her home. This is great in one way- I always do better when I have to stay somewhere and can’t roam around because of feeling uncomfortable and all ADHD.

In other ways, it scares me. Do you have bipolar? Have you thought of the people in your life whom you love and what would happen if they were suddenly gone? I think of this all of the time. I am not concerned about my mother today, it really is routine. But I think of how it will be if she dies. Yes, I am honest about it and use the real words and think about it a lot. I have to prepare ahead for the things in life that will tip me into serious mood swings.

Today is an occasion where I think of how I am as a daughter. Would I pass this checklist?

1. I love my mother and show her this by treating her with respect.
2. When she drives me bonkers, I remember that time on this earth is short and a mom driving me bonkers is a good thing!
3. I tell her how much she means to me. Often, I can’t say it in words because I will cry and it’s too painful for me, but I do show her with my actions. Such as being here for her surgery.
4. I am honest about the bipolar and we use my treatment plan together. It saved our relationship.

I can pass this test. My mom has been my constant star and I am thankful. It was not always this way. Relationships ebb and flow. I made the decision to stay here in Portland, Oregon becuase my mother is here. It was a good decision!

Is there someone you love who takes care of you when you’re ill?  Have you said thanks lately!  Thanks mom!

Julie

My mother Rebecca and my nephew David

Waking up Irritated

Irritation is a common symptom of bipolar disorder. It’s a dangerous symptom because people do not like to be around someone who is irritated. It’s hard to notice the mood swing as irritation can be a normal part of life- unlike depression and mania. Here are some basic signs of irritation:
– People are in your way and you want to push them out of the way.
– Stupid things make you mad. You can’t laugh at them or brush them off- you want to DO something about them and complain to someone about them.
– Road rage becomes obvious.
– You have no patience for what seems like inconsequential babble from others.
– You would feel better if you could kick something.

If you have any of these signs, it’s essential to recognize them and see them for what they are: symptoms of bipolar disorder. You can’t act on them. You will lose friends, jobs and possibly your license!
No kidding. This is especially a problem for young guys with bipolar. The Health Cards taught me to know my signs of irritation so that I could see what they were and not act on them. They taught me to keep my mouth shut, my hand off the horn and move away from things I want to kick.

Julie

My book Bipolar Happens has some great stories about irritation and how to manage it when the feelings show up.

Newsletter: EMpower (True Hope) Supplements for Bipolar Disorder

I recently received a common from Alex about the over the counter mental health supplement ‘EMpower’ from the manufacturer True Hope.  He wrote in response to my blog post on the potential dangers of EMpower and other such natural supplements. I have replied below.

Hi Julie,

My father killed himself when I was only two years old, after only a few weeks of manic behavior (his condition went undiagnosed at the time). Twenty years later, my sister was diagnosed with Bi-Polar disorder after a few months of insane and dangerous behavior. She spent two days in a mental institution before being released. She slept about four hours every two days, and would swing from extremely hyper to drowsy/lethargic in a matter of minutes. My family and I spent two weeks keeping her on round-the-clock suicide watch. During this period, we kept her on the proper loading dose of EMPower (which I think was something like 24 pills a day). Within one week, she was sleeping through the night (at least six hours). Within one month, her mood was stabilized. Within three months, she was back to normal. This was six years ago. She’s had minor recurrences, but they’re always linked to stress/diet/sickness.

This isn’t to say that EMPower is the cure-all. These types of situations are almost always multifaceted. Her environment leading up to her mania was a big factor, and the family support and comforting, safe environment during the recovery was huge. Also, diet played a roll during the bad months, and healthy home cooked meals were served while healing.

I must say, I cannot fathom how anything in EMPower could actually CAUSE mania…

Julie

Hi Alex,

Thanks for writing.

I am happy that your sister has done so well. She is very lucky. One of the problems with all over the counter medications is that they are working on our brain chemistry just as pharmaceuticals do- and it’s so very delicate to pinpoint what will work and what won’t. I am extremely, and I mean extremely sensitive to medications and supplements which means I am rather the poster child for what could go wrong.  Many people can take the drugs I can’t tolerate.

The biggest problem with over the counter supplements is not that they work or don’t work, it’s that the potential for harm is not discussed. If you visit the EMpower supplement webpage, there are no warnings that it can be very unsafe for people with bipolar disorder. That needs to be on the site just for safety. Instead, the site talks about its effect on mood- but not specifically how it works on bipolar disroder. Bipolar is a far more serious illness than depression, so I feel the site intenitally sticks to the benefits EMpower has on the treatment of depression and skips the mania worries.

I am not saying I’m against supplements. For example, I recently tried an amino acid over the counter supplement that shows some promise in bipolar depression research. (EMpower also includes amino acids). Within one week I was so hungry and so agitated manic I could hardly function. Then the depression started and stayed off and on for four weeks! And yet the study had great results with the participants. It was a national study reported in the Bipolar Network News. I always check with my coauthor Dr. John Preston about anything I try and let my family know when I take something new. But I still got sick.

There is no way people are going to stop trying new things- my point is that the active ingredients in over the counter products such as EMpower can work or they can have very serious consequences. I tried EMpower because I wanted to get better and it seemed natural – it is very natural, but I became manic and psychotic and it was not pleasant.  When I called the help line they said there was no indication that it caused mania and psychosis- and yet, I was on the line telling them it had! All I want is for natural supplement companies to list the possible dangers of the supplements for people with mania. But you don’t even get that with big pharma, so I doubt it’s going to happen soon.

It’s essential that we all check out what we are taking and then have someone watch us closely for mood swings.  This includes all non psychiatric meds/supplements as well- such as cortisone, 5-HTP, valerian or melatonin. I know so many people who do get relief from supplements- but they always hear the same lecture from me- Watch for signs of mood swings!  (For example, the over the counter supplement   5-HTP is a naturally occurring amino acid that works on serotonin much the way Prozac works on serotonin. Prozac can cause mania as can 5-HTP. This means it can be a very dangerous albeit natural drug for people with bipolar disorder. )

We have to know how everything we put in our body affects bipolar. I do not believe in taking anything where research has shown it can cause mania.  I believe that all products such as EMpower need to list the possibilites of mania and psychosis along with the benefits of the supplements. Then a person can be ready for what might happen.  People with depression can take supplements that many of us can’t-  and it’s all because of the mania risk found in bipolar disorder.

Thanks for your comment. I am so very happy for your sister.

Julie

Here is a page regarding EMpower from the great Dr. Jim Phelps. Dr. Phelps is a true pioneer in the research and treatment of bipolar II and especially rapid cycling.

http://www.psycheducation.org/depression/meds/truehope.htm

PS: If you go to the search function to your right, you can type in Empower, True Hope, Rapid Cycling and Mania to learn more about each topic.

Glenn Close on Bipolar Disorder and Schizo Affective Disorder in the family….

The Actress Glenn Close and Family Tackle the Stigma of Mental Illness.

I knew that Glenn Close’s sister Jessie has bipolar disorder. I didn’t know that Jessie’s son Calen has schizoaffective disorder.  That is a lot for one family, but not uncommon at all. I’m glad to see people who are well known use their platform to say the words….

BIPOLAR DISORDER

SCHIZO AFFECTIVE DISORER

SCHIZOPHRENIA

in such an open way. Hallelujah! When I was diagnosed in 1995, most people didn’t know the term bipolar disorder, including myself!

Here is the article about Glenn Close and her family. If you are outside the states, Glenn Close is considered one of the best actresses in the US and has moved from movies to a successful television show.

Click here to read the Glen Close story.

You can read more about schizoaffective disorder on the blog- check out the categories to the right and look for the schizo affective section.

Bipolar Disorder and Work: Why can I work some days and then some days are so hard?

Ah, the essential question about work… why are some days so tough and then the next day you can just get up and do what needs to be done?

It’s simply the nature of the ilness.  It is the main reason so many people with bipolar disorder can’t or choose not to work at a stressful job. It’s hard for us to maintain a consistent work ability day after day. The mood swings often get in the way.  The secret is to find work that allows for mood swings. I know, this is hard. It’s very hard, but it’s possible.

It also helps to be ready for the mood swings and have things in place to get your work done anyway.  I also make sure I use the good days to my full advantage and work as much as I can. Deadlines help me a lot.  Get it Done When You’re Depressed is especially helpful when you absolutely have to work, or take an exam, or go to an event, etc.

What works for you? Going up and down in your work ability doesn’t happen because you can’t get your act together. It happens becuase it’s part of the illness. 

Julie

PS: I spoke to a wondeful audience at the Eugene Faith Center in Eugene,  Oregon this weekend. I will post pictures soon.  Giving the presentation was amazing- the work involved before and after was hard. Once again, that’s just how it can be with this ilness!