You CAN Get Well Enough to Work

artworkAfter 15 years of daily bipolar disorder management- I’m really seeing the results. I never thought I would get better. I’m going to sound like a broken record on this, but it’s true. You can get better. I can’t give you a time frame, but it can happen.

By better I mean that I can work part time. It’s interesting that I would measure my success on this level,but I do. I have worked for years on my friendships and they are going well. They are always challenging,but I feel I have the skills to deal with what comes up- especially in terms of my jealousy and paranoia when I get depressed. I have a good relationship with my family. I can see a lot of good things in my life. It’s not perfect of course.  People leave me – get upset with me- maybe even grown tired of me! But I can handle it.  The big change is that I can sit and work.

Being able to work without getting sick has eluded me for many years. It happened because I found medications that work well with my management plan.  It took a long time to adjust to the side effects- and my life is not perfect- which I very naively thought it would be! But I’m better.

Believe me, if I’m 49 and am working more efficiently than in many years.

Julie

Bipolar Disorder and Suicide

suicide hotlineSuicidal thoughts are normal when you have bipolar disorder.

I remember driving one day when I was very stressed and unhappy. I was on a busy road and saw a red light up ahead. My mind said, “Julie, you can just run that red light and a car will hit you and all will be taken care of!” These thoughts used to scare me a lot. I now know they’re a response to stress. When I told my friend Laney this story she said, “Well, your brain thought is was helping!”

So true. These thoughts are not real. They are manufactured by a bipolar brain. Don’t believe them.

If you are suicidal right now, you have options other than killing yourself.

#1 Say to yourself:  I have bipolar disorder and suicidal thoughts are normal. Say it over and over again until you get help.

#2 Call anyone and do anything to get help and be honest when you talk to someone. “I’m suicidal and I need help.” You can walk directly to an ER and do this. Crisis lines are there to help. They know what they are doing. Call a friend. Do ANYTHING. This is a health problem and not a personal problem. If you were hit by a car- you would call someone!

#3 If you have to, stay in the  hosptial to protect yourself from bipolar disorder. It’s a safe place.  You’re a strong person if you go to the hospital. Bipolar disorder is the problem- not you.

#4 Don’t worry if you’re embarrassed. Better embarrassed than no longer on the planet.  Bipolar disorder has embarrassed me a million times. And will probable do it many more times in the future.

When I’m suicidal, it’s always a sign that my meds are not working or that an event has happened to send me over the edge. I try to focus on fixing those things instead of listening to the suicidal thoughts. These suicidal thoughts are often the result of something I can definitely change. Once it is changed, I can get back to baseline.

If you kill yourself over an event, it’s not effective. It’s more effective to deal with the situation or leave it completely.

There are definitely situations where the bipolar is 100% responsible for the suicidal thoughts. This is when nothing has happened and there is no reason you should be so miserable. These suicidal thoughts have to be taken very seriously as your brain is really malfunctioning. This is when medications can be life saving.

Keeping yourself alive is all that matters when you’re suicidal. If you can’t do this yourself-turn yourself over to someone who can.

Remember: No one stays suicidal all of the time. It ends.

If you had brain cancer you would ask for help with ease. Asking for help with suicidal bipolar thoughts is no different.

Julie

PS: I had my first suicidal episode at 19. I am now 49. It can be managed.

A letter to the partner of a person with bipolar disorder

Dear Loving Partner,

Here are the qualities I so appreciate in you:

1. Consistency- this helps me stay consistent.

2. Understanding of my need for structure- and an equal understanding of how hard it can be for me to create and stick to structure.  (This is a tough one and is often very hard on you I know.)

3. Willing to read books about bipolar disorder- especially Loving Someone with Bipolar Disorder and Take Charge of Bipolar Disorder.  We can then talk about the illness together.

4. Love, kindness and honesty.  You have to tell me how you feel if I upset you- otherwise it stays bottled in and you will want to leave  me.  And then you feel guilty! ( I know you probably feel this way sometimes and it’s ok.)

5. When I am unreasonable, you say, “This is bipolar disorder talking. We need to focus on managing this illness together. I love you, but I will not have you treat me unkindly.”   This is how to avoid The Bipolar Conversation.

6. Stability. Your stability helps my stability.

7. I want you to expect the same standards as above for me so that our relationship will be equal and not one based on caretaking.

Thank you,

Your loving partner

My Mother and Bipolar Disorder

mom beans small 2012My Mother Rebecca!

I am the luckiest person in the world when I get sick. My mother is always there for me. I can only imagine what it’s like for her. I don’t ask her about it much as it would make me cry. She does what she has to do. When I’m suicidal, she reminds me to use my Health Cards. When I’m manic, she gets out my cards to remind herself what to do. Actually, she has them memorized now, so she doesn’t have to read them anymore. She helped edit all of my books before I sent them to the publishing companies!

I can remember being so depressed one day I rolled around on the floor sobbing. Imagine being a mother and having to see your child go through that! It breaks my heart- so I just do what I can to be the best daughter possible.

Are you a mother with a child who has bipolar disorder? I take my hat off to you, that’s for sure!

Julie

Famous Pioneers with Bipolar Disorder. Thank you!

buzzJeanClaude_vanDamme lindacarrie

 

 

 

 

 

patty

 

 

 

Buzz Aldrin, Jean Claude van Damme, Linda Hamilton, Carrie Fisher and Patty Duke.  These mental health pioneers talked about their bipolar disorder before society even understood the term.  We owe them many thanks!

Thank you pioneers!

Generic Lamictal (lamotrigine) for Bipolar Disorder

Bipolar Disorder and Medication Woes: Generic Lamictal ( Lamotrigine)

This is a long newsletter as it is a long story about bipolar disoder and genetic medications!  This is a past story that is still relevant.

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Have you noticed that bipolar disorder can sneak up on you in so many ways? I’m always amazed when it sneaks up on me and I get sick no matter how carefully I manage the illness. For the past few weeks, I’ve had a terrifically difficult time working. I have also been really hard on myself. I kept saying, “What is wrong with me! Why can’t I just sit down and finish this book project! It’s only about 20 hours of work and then I can get another book deal! Why am I putting off something that completely affects my future?” This went on for weeks. I just assumed I was being lazy. But I know I’m not a lazy person!

I also found myself spending a lot more time alone – and I’m a very social person. My brain just seemed to shut off. I floated around a lot.  There was little creativity and I had trouble sitting down. I then had trouble with anger and got mildly manic a few times. I started to twitch and felt really itchy. And still… I was hard on myself for not getting things done!

I got out of the house and saw friends- but everything was a struggle. I used all of the tips in my books and that kept me functioning. Soon, I felt like I was going to jump out of my skin. I was so restless. But I was also super tired! Then the depression started. It was the kind of depression where I not only felt hopeless, I cried a lot and had trouble completing tasks. I have been like this many times in my life, so I kept going, but it was hard.

Finally, I went to visit a writing friend of mine a few hours away from my house. I had anxiety on the way there and had trouble deciding if I should spend the night or come back and sleep in my own bed. I couldn’t sit and then started twitching again. I alternately felt ok and then anxious. And then it hit me…. it had to me by meds. If you have been following my medication situation on the blog, you will know I switched to generic Lamictal in December.  This is actually called generic Lamotrigine. When I got back from my friend’s house- I had such a bad downswing I had to call my mom, my coauthor John, my insurance company and my doctor to help me. They all agreed it was my meds.

I did a LOT of research to check on the efficacy of generics. I was told they have the same active ingredients, but that the way they metabolize in the body can differ with each person. The active ingredients may have been the same, but the way the medication went into my body didn’t work. I’m now back to my Lamictal and am starting to feel better. I also feel relief that it wasn’t me- it was the generic Lamictal not metabolizing in my body. This is the reversal of the typical, it’s not you, it’s me!  Ha ha.

Generics work for most people- my mom, a friend and many people who read this blog are on generic Lamictal with no problems. There is a long discussion regarding this topic on the blog. If you go to the right menu and click on Lamictal, you will see the entries and comments.

I wrote this long newsletter for a few reasons- first, we have to be so vigilant (as do the people around us) and notice the signs of illness way before they go too far. I had been doing much better work wise for almost a year, so when it got though, I should have seen that there was something wrong. Also, isolating myself is not the real me and I am very rarely tired. There is a long list of what I could have seen. I also knew in my heart that generics were not right for me as I am ridiculously sensitive to medications.  The person with bipolar disorder and the people around that person are the best tools for managing the illness. When I got out my Health Cards and looked over my symptoms, I saw so many signs that I was ill. I wish I had opened  The Health Cards sooner!

I am doing quite well these days. It’s great. Now I can finally get my book proposal done and be proud of myself!

FYI:  The brand Lamical is made by Glaxo Smith Kline. It’s an anti convulsant that is especially effective for treatment resistant depression. It also helps my rapid cycling, hypomania, OCD, psychotic and ADHD symptoms! This is why I got so ill with the generic lamtrigine. Whether you take Lamictal or the lamotrigine works for you, as it does many people – it truly is a miracle drug and I hope it works as well for you as it does for me.

Julie

A final note: I want to reiterate that I am not against generic medications at all! I just want all of us to monitor symptoms very carefully whenever we change meds or try new meds. We know our bodies best!

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